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Dine for 1p36 Deletion Support & Awareness

THE FACTORY 4020 Atlantic Avenue, Long Beach, California, Stati Uniti

Jon and Diana Marshall cordially invite you to support the nonprofit organization 1p36 Deletion Support & Awareness by attending a fundraiser at THE FACTORY Gastrobar (featured on Diners, Drive-Ins and Dives) on Sunday Apr 6th starting at 3pm.

Show up, enjoy some great food/drinks, jump in on some raffles and have a a great time! We're setting up some fun family activities and I should mention that The Factory has a Kids Eat Free promo from 5-7pm with purchase of adult entree.
Some special menu items will be highlighted that yield a 100% contribution to 1p36 DSA - like name your price drafts: Deschutes Brewery Fresh Squeezed IPA and Speakeasy Payback Porter!

Here are the enticing raffle packages that we're offering during the fundraiser:

Raffle #1: (4) park-hopper tickets to Disneyland/California Adventure valued at $548
Raffle #2: Coach bag set valued at $148
Raffle #3: downtown LB package with gift cards to 3 different restaurants valued at $125
Raffle #4: Scrapbook package valued at $100
Raffle #5: 16GB Apple iPod nano valued at $150
Raffle #6: Cellar Beer Package valued at $265
Raffle #7: Drink Now Beer Package valued at $148
Raffles #8: Bixby Knolls package A valued at $200
Raffles #9: Bixby Knolls package B valued at $260
Check out the Comments section for raffle details. Raffle drawings should commence at 7pm - drawings are separate (not one big pot of tickets, instead one for each raffle prize) and you don't need to be present to win.

This is an open format fundraiser so you can come by at your convenience. Hours are posted for structure and to provide an estimate on when raffles will occur. Please come support the nonprofit organization that offers so much for individuals (and their families) that are diagnosed with 1p36 Deletion Syndrome.

For those not familiar with our daughter Bella Marshall, in 2009, she was diagnosed with 1p36 Deletion Syndrome - a congenital genetic disorder caused by the deletion of the most distal light band of the short arm of chromosome 1. Chromosome 1 is the largest human chromosome and represents about 8 percent of the total DNA in human cells. The "p" stands for the short or 'petite' arm of the chromosome; “36” stands for the location of the deletion on the chromosome. It is estimated that 1p36 Deletion Syndrome occurs 1 in every 5,000 to 10,000 births.

1p36 Deletion Support & Awareness was founded in 2009 by parents of children diagnosed with 1p36 Deletion Syndrome in hopes to bring support to families and greater awareness to society regarding this condition. The mission of 1p36 Deletion Support & Awareness is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. 1p36 Deletion Support & Awareness is the only organization in the US focused entirely on support and education for 1p36 Deletion Syndrome. The organization works closely with patients, families, researchers, and physicians. For more information you can visit http://www.1p36dsa.org/

Photos and videos of Bella can be found through the following link http://flic.kr/s/aHsjF6tk4k

Here's the Evite link for anyone that you'd like to share this info with outside of Facebook:

Thank you; we look forward to seeing you there!
Special thanks to The Factory for allowing us to come in and have this fundraiser.

Jon & Diana Marshall

Veniteci a trovare
il 7 aprile 2014

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