A Chance for Chase: Family Friendly Fundraiser for Chase Kuehl, our son who has been 1 of only 1000 people in the world diagnosed with Phelan-McDermid Syndrome - a rare chromosomal deletion that will affect Chase in many ways for many years to come.
You’re invited to a summer BBQ and fundraiser in a beautiful lakeside setting surrounded by green mountains.A Chance for Chase is an all-day, family fun event focused on raising donations to help a local family of five whose youngest has recently been diagnosed with a very rare genetic disorder: Phelan-McDermid Syndrome. This fundraiser will allow our family to attend the 2014 PMSF International Conference in Orlando, FL. With a condition so rare, this conference allows us to learn and connect with other families and get updates on research and tools to help give Chase the life he deserves. This event also aims to alleviate the burden of healthcare, medical cost and therapies that come along with raising Chase.
WHAT: Fundraiser featuring food, live music, silent auction and children's activities.
WHEN: Sunday June 8, 2014 at 2pm
LOCATION: Mountain Meadows Lodge, 285 Thundering Brook Rd, Killington VT 07521
TICKETS: Buy tickets online, at the door or at the venue:, Mountain Meadows Lodge in Killington. Checks made out to 'Chase William Kuehl Third Party Trust' also accepted, along with donations (mail to 2 Foster Place, Rutland VT 05701). More information will be available on Facebook shortly.
WISH LIST DONATIONS: ALL complete purchases of 'wish list' items also gets you two free tickets to the fundraiser A Chance for Chase. Please include your name and email address so we can send you the tickets.
Donation Website: www.gofundme.com/achanceforchase2014
FURTHER EVENT INFORMATION:
Soak up the warm June weather while enjoying live music from three local bands: Chris Kleeman, Chad Hollister, Atlantic Veil and the talents of DJ Dave with special guest. Feast on food from Mountain Meadows Lodge and the best area restaurants, as tents ensure a great time will be had by all, rain or shine.
It will feature plenty of children’s activities including a tie-dye station, Circus Theatricks, and the resident animals that make Mountain Meadow their home and many other surprises! Swim or go kayaking in the water, dance to the music, and celebrate the beauty of being a part of such a supportive community.
Don’t forget to bring your swimming suit, dancing shoes and of course, generosity as there will be a silent auction as well, featuring an impressive array of tempting gifts and treats. From jewelry and gift baskets to a skateboard signed by Tony Hawk, there will be plenty of exciting items to bid on.
Tickets for this full day event help us prepare for the crowd and necessary food donations. We hope that you recognize that this is a fundraiser for a worthy cause. All aspects of this event are being donated – the venue, tents, tables, chairs, music, food staffing. We gently suggest $25 per family but please give what you can, whether it’s $5 or $100.
Phelan-McDermid Syndrome: The PMS Foundation http://22q13.org/j15/
The PMSF International Conference: Held every two years - http://22q13.org/j15/index.php?option=com_content&view=article&id=280&Itemid=244