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Camryn's Gauchers Disease awareness Benefit

Polish Eagles Sport Club 3157 E Thompson St, Filadelfia, Pennsylvania, Stati Uniti

Camryn Campbell is an exuberant 6 year old girl who was diagnosed on January 24th 2014 with Gaucher's disease. Her body does not make an enzyme which is responsible for many things.
Her spleen is 17xs too big and her liver 2x the size. She gets 2 CEREZYME enzyme infusions twice a month at Children's Hospital of Philadelphia for the rest of her life. Camryn has recently been hospitalized due to severe bone pain after her infusion treatment and is being treated with morphine to help ease the pain.

Camryn has a huge smile that lights up the room as soon as she steps in it. She is a sweet & loving little girl who enjoys dance, arts and crafts, as well as painting, drawing & loves music. She loves school and receives distinguished honors every semester. She loves to be a kid. Camryn has an older brother, Donny 8 years old. They are best friends. They still sleep together and watch a movie every night. She loves riding her bike, in which she can no longer do because of this disease. She has several limitations as to what a child can do, including gym at school.

Family & Friends are organizing a Beef & Beer to raise funds to help ease the burden of the Medical Bills & other financial related issues due to Camryns condition and what she’s expected to face the rest of her life. We are looking for donations to help with a Beef & Beer. From baskets/Items to auction off to Food, paper products, drinks etc. If you would like to donate please contact Denny Wolf @ 267-258-1014, TICKETS WILL BE $30. Not sold at the door
Brian Tuner 215-800-5052,
Staci Turner 267-258-7094 Joann Davis 215-370-6855

Gaucher's (go-SHAYZ) disease occurs when certain harmful fatty substances accumulate to excessive levels in your liver, spleen, lungs, bone marrow and, less commonly, brain. This accumulation of fatty material in tissues interferes with how your body works and may cause organ enlargement and bone pain. Gaucher's disease is caused by a deficiency of the enzyme glucocerebrosidase, which helps the body process the fatty substance glucocerebroside. The disease is sometimes called glucocerebrosidase deficiency. These cells infiltrate bone marrow and organs.

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il 15 giugno 2014

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