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ACDHO 2014 European CDH Conference

Bewleys Hotels Dublino, Irlanda
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First Ever Annual International European Congenital Diaphragmatic Hernia Conference for Families!


Dublin, Ireland

August 11 - 15, 2014


All members in good standing from ANY country are welcome to attend!

Questions or information? Contact our UK CHERUBS Representatives Clair Maher and Melanie Parsons at uk@cherubs-cdh.org



CDH FAMILY CONFERENCE

For over 10 years CHERUBS has held CDH Conferences, with our set up as:


Day 1 - Pizza Party/ Dinner

• Family Introductions
• Parade of Cherubs

Day 2 - Research Day

• Medical Speakers
• Medical Q&A Panel
• Free Genetic Testing
• CDH Lab & Clinic Tours

Day 3 - Awareness Day

• CDH Research Bill
• April 19th
• Volunteering
• Fundraisers

Day 4 - Support Day

• Round Table Discussions
• Kids CDH Song Performance
• Family Conference Conclusion

Posting to give families a bit of history of what our conferences have been like for the last 10 years so you have somewhat of an idea what to expect at not just our conference, but all CDH conferences now (we love teaching others!). BUT how we set up our Dublin conference will be NEW and not public knowledge until closer to the date. We like being ORIGINAL and creative and are very excited to work with MANY other charities in ACDHO in the first truly European CDH Conference! Stay tuned! :)


Hotel Information can be found at http://www.thomaspriorhall.com/hotel

Limited number of Rooms available at a discounted rate of:

Double Room B&B (2 Adults) €99 Per Room Per Night
Triple Room B&B (2 Adults and 1 Child) €104 Per Room Per Night
Family Room B&B (2 Adults & 2 Children) €109 Per Room Per Night


Because our conferences are confidential to maintain privacy and allow parents to talk freely about their journeys with CDH, we only allow members of CHERUBS and participating ACDHO charities to attend. This is also to keep our members safe and medical information private. All CDH parents are invited to join CHERUBS for free by registering at our site at http://www.cdhboards.org

• 3 half-days so you have time to see local attractions
• Pizza party and parade of cherubs
• World renown guest speakers
• Great round-table discussions for families of survivors and angels
• Participate in CDH Research
• Meet other CDH families
• Kids are always welcome!
• Special needs families often qualify for grants to attend (check with your social worker)
• Our conference makes a wonderful family vacation


CDH Family Conference:

Because our conferences are confidential to maintain privacy and allow parents to talk freely about their journeys with CDH, we only allow members of CHERUBS to attend. This is also to keep our members safe and medical information private. All CDH parents are invited to join CHERUBS for free by registering at our site at http://www.cdhboards.org

* 3 half-days so you have time to see local attractions
* Pizza party and parade of cherubs
* World reknown guest speakers
* Great round-table discussions for families of survivors and angels
* Participate in CDH Research
* Meet other CDH families
* Hotel rooms are always affordable for the area
* Kids are always welcome!
* Special needs families often qualify for grants to attend (check with your social worker)
* Our conference make a wonderful family vacation!!!!



CHERUBS MEDICAL ADVISORY BOARD

• Patricia Donahue, MD – Massachusetts General Hospital
• David Kays, MD – University of Florida at Gainesville
• Henry Rice, MD – Duke University Medical Center
• Edmund Yang, MD – Fetal Treatment Center of St. Louis
• N. Scott Adzick, MD – Children’s Hospital of Philadelphia
• Kevin Lally, MD, MS - University of Texas Medical School at Houston, CDH Study Group
• Wendy Chung, MD - Columbia Presbyterian, DHREAMS
• Doug Miniati, MD - University of California San Francisco
• Jan Deprest, MD, PhD - University Hospital Gasthuisberg, Leuven, Belgium
• Paul Losty, MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) – Liverpool University, UK
• Steadman McPeters, NP - Pediatric Surgery Nurse Practioner, Huntsville


PAST CHERUBS CONFERENCE PRESENTERS

The following have presented at CDH Family Conferences in past years:

• Jay Wilson, MD - Boston Children's Hospital, Harvard University
• Patricia Donahoe, Massachusetts General Hospital
• Michael R. Harrison, MD - University of California at San Francisco Fetal Treatment Center
• David Kays, MD - University of Florida at Gainesville / SHANDS
• Meaghan Russell, MPH and Mauro Longoni - Mass General Genetic CDH Study Program
• Marc Arkovitz, MD and Julia Wynn - New York Presbyterian Columbia / DHREAMS
• Bella Belleza-Bascon, RN, MHA - Texas Children's Hospital / Fetal Center, Baylor College of
Medicine
• Kevin Lally, MD - CDH Study Group
• Daryl Scott, MD and David Pearson - Baylor Genetic CDH Study Program
• Dr. Edmund Yang, St. Louis Fetal Care Institute
• Ruben Quintero, MD - Fetal Treatment Program
• Priscilla Chiu, MD - Sick Children's, Toronto, Canada
• Brenda Slavin, RN - Children's National Medical Center, Washington DC

Veniteci a trovare
dal 11 al 16 agosto 2014

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